
I had mentioned identity in this post. In the last year, I have spent a lot of time wondering if I should “let” my identity change, because to a large extent we absolutely have the choice when it comes to our identity. We do not have to let anything, up to and including medical diagnoses, change our core identity.
Chronic disease doesn’t hurt your body first. It hurts your illusions. I finally realized no one is coming to save me, and that is good. It’s about time I simply save myself. And for the most part, I have been still doing my core identity things, as a healthy lifestyle enthusiast. But there was a part of me that was waiting for something or someone else to step in and do the heavy lifting, so to speak. To fix or change my new reality. And that thinking has got to stop so I can move forward.
There is no denying the fact that my day to day life looks different than it did a year ago, (and I actually do need my husband to do heavy lifting for me, that is medical fact=heavy lifting can both strain heart valves and inguinal hernias). But even without heavy lifting, this week has tested me. I am glad that the week is almost over.
Chronic disease is defined as “a long-lasting health condition—typically lasting one year or longer—that requires ongoing medical care and often limits daily activities. Unlike acute illnesses (like the flu), chronic diseases develop slowly, are rarely curable, and are instead actively managed to control symptoms and prevent complications.” —Google
The first identity change I made was being diagnosed with Celiac Disease. In the fall of 2011, at the age of 40, I absolutely embraced my diagnosis as part of my new identity. I truly helped to embrace a new identity, because there are a lot of changes that needed to be made to actively manage Celiac, and adopting a new identity surrounding that diagnosis is one of the tools with which to make changes for life.
And the changes I made were life changing! But more importantly, full of incredible and very noticeable improvements in my overall health.
Then recently, my sister was diagnosed with Celiac, and I felt a last puzzle piece fully shift into the place that allowed me to let go of the teeny tiny 1% piece of doubt that I had held on to, (not having done the intestinal biopsy). Don’t get me wrong, I was strictly gluten free, if not fully believing the initial diagnosis via blood test without biopsy, but then fully believing what my drastic health improvements told me. But having a member diagnosed in a medical setting as triple positive, meaning three of the primary celiac blood tests (serology panel) returned positive results, (a form of more conclusive testing that was not available in 2011), that really shifted a piece of my Celiac identity. I truly have an autoimmune disease, not just a “sensitivity” or intolerance.
But being diagnosed with chronic diseases that do NOT have the drastic health improvements attached for me the way going gluten free for Celiac did??
That has been harder for me to deal with in a positive way.
After serious struggles this week with how I feel and function, I am now really feeling quite down emotionally. And I was feeling so “up” my last couple of posts. 😞
Hence, a few posts will be coming up about my identity as I try and sort this out for myself.
























