I am Sensitive, Too Sensitive

I have been enjoying skating again, very much. I fell yesterday, “Toe pick!” but if you ever watched the film “The Cutting Edge,” you know that sure, falling is never fun, but if you are already in motion, you end up sliding on the ice after you go down, which actually disperses some of the impact. So, I didn’t break anything, just a bruise or 2. #worththeriskevenwithosteoporosis.

Having hEDS means my skin is highly sensitive. “This increased sensitivity is a recognized, though not always emphasized, symptom that can manifest as pain, discomfort, or an exaggerated reaction to light, touch, or textures.” —Google. I used to think my sensitivity was one of my slightly neurodivergent traits, but it is nice to know it’s not just “all in my head.” Honestly, it almost always takes me more than one try to put on a pair of shoes, because if I don’t get the seam of my sock just right, then it will bug me to distraction.

Also, I do not have very thick skin, literally and figuratively. Literally, my skin is quite thin and translucent in certain areas, back of the hands, top of my feet, inside of my arms, so that all my veins are highly visible. Figuratively, because I am very sensitive to criticism and feeling as though I may not be believed, especially when it comes to whether something “hurts” or not. Pain is very individual and subjective, but sadly, not being believed by doctors does happen to a certain amount of patients. And my mom, who has a very high pain tolerance and forgoes freezing at the dentist for a filling, is fond of saying, “It doesn’t hurt, you only think it does.” I have to remind her she is the exception, not the rule, and I was NOT gifted with that particular high tolerance gene.

Interestingly, having a public blog actually opens me up to criticism, but I love this narrative space despite the risk. I try to be a nice person, word my posts in a manner to reflect my true nature as someone who is open to all sides of an argument, and not one to be judgmental. I am more interested in learning new things, not in trying to change anyone’s mind. But regardless, not everyone is going to like me, or what I have to say. I’ve often thought it is only a matter of time until someone out in cyberspace calls me a drama queen, especially now that I have been complaining (but actually intending to simply validate myself, not necessarily complain) about recently diagnoses and “issues with my tissues.” BUT! Thankfully, in the 15 years I’ve had this small little blog, (started in 2011 first for my creative writing, then expanded in 2019 to include my dieting health journey), I have never received a negative comment. Personally, I really love the WordPress community, and I am grateful for people who post regularly, and even those that don’t. I love people who share their stories.

I cover all this personal back story because I found myself yesterday, on February 9, taking a picture of the remaining pink circle on my chest. Sunday night, I felt a faint burning sensation in 2 of the spots that started as hives 3 weeks ago, but nothing was visible to the naked eye. Then yesterday morning, the burning sensation was gone, but the other 3 spots were still itchy. One of them was pink, so I took a picture. I am still experiencing on and off digestive discomfort as well. Ug! Talk about sensitive! 3 weeks later, and I still need to take allergy medication. After the spots faded significantly in the first week, I discontinued the prescription steroid cream. I only use that stuff sparingly, as it is quite strong, especially considering my sensitivity. I am just taking the Allegra, when I experience a symptom.

But then I asked myself, why are you taking a picture of that 1 barely visible spot?? Because unless I have “proof,” I fear I won’t be believed that I am STILL having this reaction.

I second guess myself, and this recent reaction (with a 6-week gap between exposure and slight reaction, and then my huge reaction which erupted January 20) is so bizarre, it has really triggered my feelings of “I may not be believed.” I am not taking a picture to convince anyone else. Nope, the picture is just for me.

I know this is routed in childhood experiences, and medical trauma when real pain and fear of injury is not believed, (for example, an impacted wisdom tooth to which local anesthetic had not yet fully taken hold, the fact of which was initially dismissed by the oral surgeon I was trusting to extract it). As I typed this, I felt the urge to declare, “I have the x-ray of the impacted wisdom tooth if you don’t believe me,” and post a picture! Except, no one is saying they don’t believe me, except me. I am the only one here, in this space, saying that. But second guessing myself like this constantly, always seeking to provide “proof,” it is particularly bad for my own self esteem.

Sigh. I am recognizing this behavior, and I am working on being kinder to myself.

The “Systemic Trigger” Continues

I am documenting this for my own records, not to complain, but to allow for my real lived experience.

I wish I knew what would “work.” The truth is, I don’t know. I don’t feel as though I know my body at all. It has become a stranger to me. Too many changes, too many diagnoses, too many symptoms, too many “issues with my tissues.”

I have spent months conducting “science experiments” on my body, when it comes to what Chat GTP called “refractory constipation.” I have tried pickles with my meals, tried kimchi, tried PEG solution, tried magnesium, tried high fiber, tried low fiber…

Sometimes one thing works…

The next time, the very same thing does NOT work.

Writing about it helps. Looking at pictures helps. 😊 Because I have a habit of giving myself self-gaslighting pep talks, with things like, “This immune response is only as bad as you think it is, or only as bad as you LET it be.” But I am not letting this happen. In fact, no one is consulting me and allowing me a say in the matter, and that is the problem.

It just is what it is, until my body is done doing what it wants to do.

I still do not know what was the systemic trigger that caused the reaction resulting in immune memory-driven recall dermatitis.

But it’s not done yet.

My skin reaction lasted all week. Friday, January 23, the activated spots made my chest feel sunburned all day.

They thankfully faded to pink over the weekend. But I have been wearing a FitBit for 26 months, then all of a sudden?:

This welt cleared up quickly with steroid cream and has not reoccurred.

And I definitely have been still feeling stiff joints, sore tendons, occasional dizziness (more than usual), and my mucosal tissues are also inflamed.

But then yesterday…

I just had a little cold diluted juice about an hour after breakfast (which I drink everyday, I have a small glass when I am thirsty, for crying out loud) and boom. First, some pain. Then within an hour my whole abdomen expanded.

I woke up this morning, and it was a bit better.

But then…

I took a shower and maybe it was the change in temperature, but my lower abdomen distended again, and currently it even hurts more than last night. Very painful to remain standing up straight. Feels better laying down, with my knees to the left.

Positive self talk is excellent, at times, but sometimes I need to just keep it real. Sometimes pain is NOT “discomfort.” Sometimes pain means standing upright is difficult, because it pulls on all the tissues that are painfully swollen. Sometimes curling on my left side into the fetal position will lessen that pain. Sometimes making a blog entry like this makes me feel better, because it just brings the experience out into the open as a fact, and not just a story I am narrating to myself in my head.

This Allergic Reaction Surprised Even Me

Warning: This post contains pictures of hives!

When I wrote this post on Monday, it was inspired by having eaten with my husband the night before. He felt like eating tacos, and instead of making myself something completely different, in a completely different pan, I decided to “join” him, and eat some taco meat (that I had prepared myself) on a bed of lettuce, while he ate tacos in shells with all the fixings. Because eating “together” is fun.

But I didn’t feel very good the next day. It was a reminder to me that my stomach generally prefers no surprises.

The Old El Paso Mild Taco Spice packet looked reasonably “safe”:

“Corn Starch, Salt, Spices (including chili pepper), Maltodextrin, Onion Powder, Sugar, Vegetable Oil (canola/soybean), Silicon Dioxide, and Natural Flavor.”

Apparently, for me, maybe it was not safe?

What happened next…I almost do not believe it myself.

Exactly 6 weeks ago, on December 9th and 10th, I wore a 24-hour heart monitor.

Of course, once I pulled off the 5 sticky patches, I had a rash under each spot. I treated the rash for a few days with my eczema cream, and it went away.

Fast forward to Sunday, January 18. I ate 139 grams of taco meat (yes, I weighed it) on lettuce, with a few grape tomatoes (which I literally eat every single day with my pickles, at lunchtime) and some cheddar cheese I grated myself and sour cream, (both of which which I eat often and without issue).

Monday, January 19, I did not feel all that well, and I was very gassy, (slow protein digestion). And I had a sore lymph node under my arm. I thought, well, that’s unsettling, (no one likes to feel a sore lymph node=alarm bell), I will have to keep an eye on that. I decided, just as long as the lymph node shrinks in a few days, it will have been nothing. I decided to blog about my upcoming dinner out for valentine’s, because with my upset stomach, it was reminding me I dislike eating out, but I must remember to think positively.

Tuesday morning, January 20, I tell my husband, wow, this lymph node under my arm is still sore. Then he says, what’s that red spot on your ribs? I go look in the mirror…

EVERY single one of the 5 spots (4 out of 5 are visible in the picture, but trust me, it’s all 5 of them, and no where else) that had become a rash after pealing up that adhesive in December…is once again flared up into a rash…but this is 6 weeks later!!

Could it have really just been the taco meat?? That is the only thing I can think that it could have been.

Anyhow, this helps:

But last night, 8 hours after taking a 12 hour dose, it wore off and these 2 in particular felt EXACTLY like I had been stung by a wasp !

Thankfully, after about an hour, the Allegra worked again, and I have vowed to take it every 6 to 7 hours (stay ahead of it) until these hives disappear.

I guess I want to document this MCAS reaction because I have experienced a certain amount of skepticism when I declare, even to my doctor recently about my hormone therapy, “Oh, I don’t think I could tolerate a subcutaneous patch, my skin is really sensitive.” Yes, I seem dramatic, but it is because this reaction was…dramatic, and a bit traumatic too. It was painful, like wasp stings, and right now my skin feels itchy and bruised, (and the spots are still red and inflamed, even though they are no longer burning like a sting). And the tendons in my ankles have stiffened up (inflammation in a “weak” spot where I have had previous/reoccurring issues). Generally, I feel like I’ve been hit by a truck. 😦

Update: I did go see my family doctor (PCP), and then talked with Chat GTP, “Although uncommon, delayed reactivation of prior adhesive-induced dermatitis is a recognized immune phenomenon. The precise reappearance at identical circular sites strongly supports immune memory–driven recall dermatitis, likely amplified by mast cell activation from a systemic trigger.” Just another interesting thing to add to my hEDS/MCAS/POTS list. My doctor checked my swollen lymph node, noted my file accordingly, and prescribed a strong steroid cream for the burning and itching. 👍

Food is Love

I get it, this is a cute cartoon and something that is very normalized in society today. Pleasurable time with other people can involve food. I know my husband absolutely includes food with any date night or daytime outing. For him in particular, food is love.

The way I currently live around food can look like dieting/calorie counting trying to keep my excess weight off. And yes, that is a part of it. There is also the Celiac factor, since 2011, which means navigating all foods for me to be gluten-free. Then add in the benefit I found (personally, for my body) in navigating all foods for me to be grain-free, which reduces my joint (inflammation) pain. Then add in the benefit I found (personally, for my body) in pretty much avoiding all ultra-processed multi-ingredient foods, including commercially available any food with colors and/or fillers, even natural ones. Anything with emulsifiers even things like carrageenan in dairy cream. And commercially available items with chemicals and preservatives, especially those in salad dressings=light my tongue up on fire. This is explained by my hEDS that gives me a lot of “issues with my tissues,” especially with my skin (eczema) and my digestive track, (nausea, bloating, constipation). That just leaves me meat, fish, eggs, dairy, fruits, and vegetables, (which is still a lot), and I simply have to cook almost everything myself from scratch.

After an otherwise wonderful holiday to Hawaii in 2017, I realized I had spent too much time feeling sorry for myself in restaurants, as I struggled to find foods that I did not react to.

After the trip, I reflected on what I could change, (namely, my attitude), and came up with my own personal motto, #notaboutthefoodthistime. I did not want to ever again waste time feeling sorry for myself in any restaurant. I decided from then on, it was not about the food, but ONLY about the company and the experience.

Except, when in a restaurant, well, it’s always about the food, isn’t it?? How can it not be??

When I see posts that show how “fun” it is to share food and good times, I remind myself, that for me, valentine’s dinner out with my husband will be about getting dressed up, and being happy he can enjoy a decadent meal out, instead of my homemade and somewhat leaner offerings at home. I will enjoy the experience, and who cares if the food I choose to eat is somewhat minimal, in comparison. Once again, I will remember my personal motto, #notaboutthefoodthistime.

I Only Know What is Normal For Me

Funny story, that “muscle guarding” of joints I mentioned here, yeah, it’s pretty hard to guard while sleeping. So Sunday morning, I woke up with my knee, (the one that can easily slip out of place, both knees can, but my left is the chronic offender), completely and painfully slipped out of place. This is not the first time (and I dare say not the last) that I have woken up from simply sleeping with an injury. Luckily, bracing it for a few days helps it heal, (sort of).

The interesting thing is how it feels to walk around with a brace on. It is such a contrast to how I usually feel, because my knee feels practically indestructible with this brace on. The same thing occurs when I have an issue with my wrist, and put my wrist brace on. As a kid, I was an expert at using tensor bandages of various sizes for all my “weak” spots, but now I have a cupboard full of various braces from my local drug store from which I can select. A few days of “resting” [insert offending body part here] with a brace on, the pain is mostly gone and I feel safe leaving it, once again, unprotected.

But the whole time with the brace on, my knee or wrist feels practically bionic! I just loved The Six Million Dollar Man (and The Bionic Woman) TV shows when I was a kid. I thought the whole concept of having ordinary human powers increased by the aid of bionic devices (real or fictional) was amazing! And yet, with a brace on, I feel like I am getting a taste of what it would truly be like to be bionic.

And then it hit me, maybe people without hEDS never feel so “weak” in the first place? Maybe what is normal for other people is to feel “bionic” (in comparison) all the time? Wow, what a thought.

It’s been normal to me for my whole life that I do not feel all that strong. I figured I was just one of “those” kids, the ones that play the piano and read a lot of books, the ones that just did not develop the strength that they could have. I felt different than the rest of the kids, but I did not think I was made differently. I just thought I hadn’t done the things I needed to do, like climb more trees, etc., to be like them. Even at a young age I knew that I could easily injure myself, simply because I had and did easily injure myself many times. I remember the first time I tried to play volleyball, one hit of the ball hurt so much! After all the fingers I had broken and sprained, (and no, it was NOT to get out of having to practice the piano), and maybe from watching The Bionic Woman, I came to gym class the next day armed with tensor bandages around each wrist, and wow, that made such a difference! Bionic!

I definitely look back at some of these childhood memories through a new lens. I am just put together a little looser than average, and that means yes, I can hurt myself in my sleep.

Ehlers-Danlos Syndrome Steps into the Spotlight

I recently watched this series Run Away on Netflix. I usually multitask a bit while a series plays in the background, so I miss little bits here and there while I am still “listening” to it, but not watching it. But at one point, I did think, “Hey, I didn’t notice before that the daughter was in a wheelchair, oh well, whatever.”

But then this article about it came up on my Facebook feed:

“It looked like a mistake at first. A detail that slipped through editing. But the truth behind it is far more human than viewers expected….

…Anya is played by Ellie Henry, who lives with Ehlers-Danlos Syndrome. It is a genetic condition that affects collagen, making joints unstable and movement exhausting. Some days, a wheelchair is necessary. Some days, it is not.

That reality was carried directly into the character….

…By not turning Anya’s condition into a storyline, Harlan Coben’s adaptation shows something simple and honest. Disability is not always visible. It is not always permanent. And it does not need a spotlight to exist.”

Frankly, 6 months ago I had never heard of Ehlers-Danlos Syndrome. That was until I was told I had it too, (hypermobility-type), and it explained why my heart mitral valve has torn, why I am struggling with small vessel constriction and circulation in my hands, why I have significant osteoporosis at only 54-years old, why I have sluggish digestion, why I now have bilateral inguinal hernias while simply working at a desk job, why my knee caps slip all over the place, why my shoulder dislocated so easily, (and was then also easily reduced, multiple times in one day, but not without tearing things and taking months to heal), etc.

I never realized with all the walking I do, it involves “muscle guarding” of my joints, especially my knees, which adds to my overall daily fatigue. But I need those lean legs muscles to keep going, so I don’t lose mobility! I notice almost right away, if I stop regular walking, how fast I de-condition. Faster than average, for sure. And my heart mitral valve leaflets did not tear because of some strain I put on my heart. Instead, my heart has strain on it because the valve leaflets are torn. So I need the cardiovascular exercise to keep my heart muscle strong, so it can handle the strain of the back flow of blood (regurgitation) caused by the torn valve leaflets.

Ehlers-Danlos Syndrome is a group of disorders, and has a spectrum, just like so many other things. Previously, I have not been high enough on the spectrum of resulting issues to have ever needed a wheelchair, for example, which is one of the reasons I went undiagnosed for so much of my life. My mother remembers taking me to the doctor at about 18 months old because I “walked funny,” my gait was very strange. She said it was almost as though I was swinging my hips to push my legs forward. In hindsight, it seems so obvious…but I totally understand how hard it would have been to realistically diagnose a loose joint/connective tissue issue at that age. Needless to say, after constant verbal correction, I eventually figured out how to hold my legs in a more steady way, and to walk straight. I also remember constant verbal correction to “stand up straight,” stop walking “knock-kneed,” don’t sit like that, etc. (Of course, extra flexibility alone, which kids naturally have their fair of, does NOT mean you have hEDS, but when you start adding up all the other issues… “If you are having trouble connecting the issues, think connective tissues”).

Anyhow, I just think that it is wild to hear that an actress hired to play a roll on a Netflix series has this same condition. And when cast for the job, Netflix just filmed her either standing and walking, or in a wheelchair, simply depending on her physical needs for the day. I think that is wonderful.

Where I Am Now

This is a really good reminder for me today, because have been struggling lately with a bit of extra fatigue. And it’s funny, because it was almost on a subliminal level, and then I finally realized that feeling tired like this was making me feel “out of shape.” And I want to be uninfluenced by these kind of subtle feelings that can hover under my radar, steering me towards bad decisions, like giving into sugar cravings. Instead, I want to pay attention to signals from my body, even when they are subtle, and be eyes wide open with my decisions.

So firstly, dieting 101: sugar cravings for energy = eat fruit, for example, eat an apple. That actually worked for me yesterday and today. I ate an apple, and I felt better. An apple is a much better option than giving in and eating some kind of pure sugar junk food (chocolate)!

Secondly, I am NOT out of shape, as in being in a state of poor physical condition. I walk regularly, yesterday I went ice skating for an hour, and I had an excellent stress test result in December, with my cardiologist very impressed with my exercise tolerance. So, even if I have been feeling some extra fatigue lately, I cannot let that signal to me that somehow I am “out of shape,” and therefore, what’s the point in continuing my routines, as though they are somehow not working. I know for a fact they do work! I just need to push past this extra tiredness, which is probably just temporary. It could be caused by many things, lack of sunlight (it’s January), maybe I am fighting off a virus, or maybe my blood sugar is fluctuating a bit, who knows. All I know is nothing about my life will be improved if I let myself slack off now. 😊

Walking is Excellent Cardio

Today, I got a “2 for 1” special. First, I went for my stress test, which overall went very well. A few “premature ventricular contractions” at the start of the test, and then more PVCs again at the end, when I bent over to re-tie my shoes, (because I told them bending over is when I feel…out of breath…sometimes, so I bent over for a minute with all the leads still hooked up).

But otherwise, all the walking I do…has paid off. I have “above average for my age” exercise tolerance. I know it’s silly, but it was nice to get a “good grade.” I have identified that I rely far too much on external validation like feeling as though I have just “passed” a test, even a medical test, but overall, I still feel good to have got it done today, and to have confirmation that my consistency with regular cardio exercise—simply walking—has paid off in keeping my heart healthy enough to handle the extra stress of this valve issue.

And instead of having to go back for the 24-hour Holter monitor on Thursday, they saved me the drive, and hooked me up right after my stress test. It was truly lucky, as at first all 7 units the hospital had at hand this morning were all booked for people today. But then someone brought one back from their appointment yesterday, and they were able to rebook it out to me before I left. Woo hoo!

I am so glad all these tests will be done by noon tomorrow! I am also able to drop my unit off at the health lab in town (15 minutes from my house—small town), instead of driving it another further 25 minutes to the next town—larger town, where the hospital is. Also, there is a free public skating tomorrow too, so I can go skating, then drop off the monitor. Perfect! 😊

Rationing Happiness

Ripley, Presley (in the pet stroller), and me. (Presley, being deaf since birth, has to be 100% an indoor cat for her safety. All her outside visits are strictly controlled and supervised).

Sometimes it feels as though true happiness is only fleeting, because it sort of is. Neuroscience has actually explored that certain events will lift us up, sometimes extremely high, (a graduation, a wedding, a vacation, your book hitting the New York Times Best Sellers List, an Olympic gold medal, whatever), but we all have a baseline we quite quickly go back down to.

In fact, in contrast to our recent burst of happiness, our baseline can now feel comparatively low.

Then we can understandably struggle with the fact that our burst of happiness felt so fleeting.

Understanding this mechanism helps me figure out why I do some of the things I do. When I am having a comparative “low” moment (which is most probably my baseline, it just doesn’t feel that way) following even a small high, (hey, I got a new couch, my first one in 18 years, I love it!), I struggle to make good decisions. It’s almost like I am angry that my happiness did not last very long. In fact, in those “low” moments, I don’t even trust that the happiness I felt was real…because it sure didn’t last long!

And then I want to medicate my lower emotions. Food, yes, some food will make me happy, won’t it?

But only fleetingly.

Then sometimes we truly feel lower than baseline for a valid reason.

I follow a blogger who has real health issues. Not that my own health issues are not real, but in terms of how the general public will scale things, my hEDS, mitral valve heart disease, and osteoporosis is most definitely trumped by cancer. He has CML, or chronic myeloid leukemia, which is “a type of cancer that affects the bone marrow, causing it to produce too many white blood cells. It is a slow-growing cancer, also known as chronic myelogenous leukemia, that can progress to a faster-growing acute leukemia if not treated.” And we can imagine cancer treatment for any type of cancer is beyond challenging on the human body. Maybe the treatment can be even worse than cancer, at times, at least until someone is on the other side of the treatment and is NED=no evidence of disease. But challenging health diagnoses aside, this blogger just lost his senior cat. And his post today had me just sobbing. In fact, a week ago, I could not even read his first post that announced the final goodbye to Clyde. When I saw the title of his post last week, I thought, oh god no, I just can’t. I wanted to “like” his post to support the blogger, but how do I communicate support without simply hitting the “like” button? Wordpress needs a “care” button, just like Facebook.

Anyhow, even though this blogger battles health issues that, in my opinion, exceed mine, (not that this is a competition), Clyde’s health conditions were even more challenging, in the end. I was just gutted by his story, but how loved was Clyde that his family never gave up on him.

And that reminds me not to give up on myself.

And I have to say this blogger, who self proclaims to not have been just the best English student in school, wrote this post today that spoke to the hardness of loss in a deeply meaningful way, but also written in such an eloquent way, that I could absorb the hardness while still seeing the incredible beauty of the unique life that was first lived.

(And although this is just my opinion of his words written, I know something of what I speak, you know, me having a Master of Fine Arts degree in Creative Writing, and all, just sayin’).

Thank you to all the storytellers out there (aka bloggers) who adrift in the sea of YouTube, Instagram, and TikTok reels and shorts, still feel called to put down words on the page. And deeply touch and inspire their fellow man.

Well Crap! (No Pun Intended)

Well, as if the Raynaud’s was not bad enough, this week I have been on a roller coaster ride with what Chat GTP calls Refractory Constipation.

“Refractory constipation is a severe form of constipation that does not improve with standard treatments like high-fiber diets, laxatives, and behavioral therapies. It is defined by the persistent and inadequate response to adequate therapy, which may be up to 4 weeks for each medication or 3 months for behavioral interventions. Management of refractory constipation may require a more intensive and specialized approach.”

Why your constipation is so refractory (hEDS-specific reasons):

People with hEDS often struggle with constipation not because of low fibre or hydration, but because of:

1. Dysmotility from connective-tissue laxity

• The bowel is physically more floppy and less propulsive.

• Transit time slows, so fibre can solidify rather than help—especially insoluble fibre.”

Well crap! (No pun intended).

Even though that all sounds really dramatic, to tell the truth, it truly sounds like a fit to what I am experiencing.

So, an hEDS related problem needs an hEDS tailored solution, which I am working on, (short answer includes regular but therapeutic-dose amounts of magnesium oxide). Although being really slow in that department is nothing new to me, it has been far worse this week.

And today is the second anniversary of my dad’s passing that I wrote about here. I should have gone skating. Instead, I spent most of the day having a lot more “what’s the flipping point?” thoughts. Add in gas build up when exercising, and it feels like my body is really turning on me! I used that as an excuse to avoid doing much in the moving my body department today.

Then we had a wonderful Sunday night roast beef dinner, and I ate a lot, without weighing my portions. My “who cares” thoughts fueled this. Then I ate a healthy dessert, (strawberries), but I really didn’t need any more food, because I was already starting to feel stuffed! Then the thoughts of, “If you are already going to feel like crap, might as well drink a big glass of that egg nog in the fridge that you have been resisting.” Good news, I managed to come here and blog instead of drinking the nog.

Hopefully I am not writhing in agony in bed later for over stuffing myself (thank goodness cooler heads prevailed before I drank that egg nog!) because I am still dealing with my “food is going in and who the heck knows when it will finally make its way out” problem. It will probably take weeks or longer to sort myself out with the new and evidence-based for hEDS advice I will be implementing. Sigh.

Sorry for all the bathroom talk. Now that I think about it, diet blogs do not usually mention the price some of us pay in the bathroom (hEDS or not) when we are NOT eating “perfectly” on our meal plan. But maybe they should. 🙂